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The rare enfermendades go to CEIP "Miguel Delibes" (28/02/2013)

The CEIP "Miguel Delibes" Puerto de Mazarrón has recently participated in an activity related to what is today, Thursday, February 28, is celebrated internationally: World Day for Rare Diseases.

Through the Department of Social Policy Mazarrón Town Hall, said school participated in the activity "Rare diseases go to school" organized by the group "DGENES" Totana.

On the occasion of World Day for Rare Diseases, the Delegation of Spanish Federation for Rare Diseases (ERDF) in Murcia are campaigning and raising awareness in schools in different municipalities in our region together with volunteers from the association and DGENES raise awareness about the problem of rare diseases to schoolchildren.

Councillor for Social Policy, Maria Martinez, explained that the initiative "will be held in other schools in the municipality in the coming weeks."

Maria Martinez explained that "the purpose of the activity is to show that, with the necessary support, people with rare diseases can develop their skills and abilities in an almost normal".

From Feder has indicated that "we want to place children and adults with rare diseases as some members of society with equal rights against any other person. This requires changing attitudes that must arise from early childhood in the school context, promoting a school for everyone to see enriched by diversity and where they can breathe an atmosphere of fairness, respect and understanding of differences. "

The World Day of Rare Diseases (World Rare Disease Day) is celebrated every year on February 28.

The idea is to sensitize society and national and international institutions on these diseases, and awareness of the special situation of living with these diseases.

Source: Ayuntamiento de Mazarrón

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